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Joaquin Eduardo Torres Gil, 14, is pictured wth his mother Joaquina in his bedroom in Mexico City, Mexico, on February 16, 2017. Joaquin is the youngest of five siblings, three of whom have been diagnosed with Morquio syndrome. Morquio syndrome is a rare inherited birth defect that is estimated to occur in one of every 200,000 births. The disease may not be visible at birth; symptoms usually begin between ages 1 and 3. Morquio syndrome is a progressive disease, meaning symptoms get worse as a child grows. Photo credit: Bénédicte Desrus